Cancer Back-Up
Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer.
CancerConsultants.com
CancerConsultants provides summaries of new treatment strategies as they are discovered and reported by cancer physicians around the world. Their medical staff attends medical meetings worldwide and reviews medical literature daily to ensure appropriate news is provided to cancer patients and their families in a timely manner.
Cystic Fibrosis Trust
The UK’s only national charity dealing with all aspects of Cystic Fibrosis (CF). It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis. The CF Trust invests over £4 million each year in gene therapy research.
Gene Therapy Patient Tracking System
FDA has a variety of patient safety programs and procedures in place for assessing and promoting the safety of investigational and approved new drugs and biological agents. For investigational products, FDA requires sponsors to report serious and unexpected adverse events associated with use of a product as soon as possible and within 15 calendar days. Sponsors must report any unexpected fatal or life-threatening experience associated with the use of the product as soon as possible, and within seven days. Prompt reporting allows the agency to analyze reports and take immediate action as indicated. Sponsors summarize other events in annual reports and information amendments that facilitate our periodic comprehensive overview of the effects of a product, including safety. FDA review teams either review related products or meet periodically to share information and discern trends.
Through experience in the review and regulation of gene therapy products, FDA has identified several concerns and issues raised by gene therapy products that differ from those typically raised by more traditional products. Because of the specific issues raised by gene therapy and because continuing and expanding research in gene therapy is creating new demands on oversight systems, FDA has pursued the development of a comprehensive Gene Therapy Patient Tracking System (GTPTS) to help ensure the appropriate oversight and safe development of these therapies.
Guide4living
For some the world can be a cold, scary and often a very lonley place. Guide4Living aims to provide completely independent information on the most pressing health and social issues of our time. We exist to provide a global online self help group and meeting place for anyone seeking information and support in their struggle to cope with disease, addiction or despair borne out of some other affliction
Patient UK
This UK resource was first launched in 1997 by PiP (Patient Information Publications). It started as a directory of UK websites which provided information of health, disease and related issues.
In December 2002, Patient UK was re-launched as a joint venture between PiP and EMIS (Egton Medical Information Systems). For the re-launch Patient UK has been extensively revised and considerably more content has been added. Our aim is to be a reliable and comprehensive source of health and disease information, mainly aimed at the UK general public, but of interest to all.
